Comments for Melissa Isabella http://hope4melissa.com Melissa Isabella's story of HOPE. A little girl with infantile spasms and developmental delays and a family who loves her. Thu, 08 Nov 2012 15:21:54 +0000 hourly 1 http://wordpress.org/?v=3.4 Comment on Guestbook by Heather L http://hope4melissa.com/guestbook/comment-page-1/#comment-13953 Heather L Thu, 08 Nov 2012 15:21:54 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-13953 Hi, someone linked to your website in a forum i'm on for Tuberous Sclerosis Complex (which is linked with infantile spasms, intractible epilepsy, among other issues in many other organs). I was curious how your daughter is doing now, and how the alternative treatments have been working for you. Our daughter is 3 years old, we've done nearly every Rx drug, as well as many alternative treatments along the way, and just a generally "natural" lifestyle along the way (she was born at home, is still breastfed, regularly wore her and sometimes still do, she cosleeps still about half the time, etc. we've tried to keep her on a low carb diet, she is gluten free and we only recently introduced some dairy, she takes a strong multivitamin, L Carnosine, a turmeric derivative (curcurmin), we cook with coconut oil, i'm about to start her on cod liver oil, and she has had cranio sacral therapy, which seemed to be the most effective for her seizures. However she is doing better but is not seizure free and her behavior is starting to get worse (she does not have autism, though she's at high risk for it with her having TSC). Someone mentioned your success with goji berries; wondering if it is still helping. Currently we are about to start down the brain surgery road, but still checking out as many alternative treatments as possible. (oh we also do essential oils and herbs). You can email me at heatherrlittle@gmail.com Hi, someone linked to your website in a forum i’m on for Tuberous Sclerosis Complex (which is linked with infantile spasms, intractible epilepsy, among other issues in many other organs). I was curious how your daughter is doing now, and how the alternative treatments have been working for you. Our daughter is 3 years old, we’ve done nearly every Rx drug, as well as many alternative treatments along the way, and just a generally “natural” lifestyle along the way (she was born at home, is still breastfed, regularly wore her and sometimes still do, she cosleeps still about half the time, etc. we’ve tried to keep her on a low carb diet, she is gluten free and we only recently introduced some dairy, she takes a strong multivitamin, L Carnosine, a turmeric derivative (curcurmin), we cook with coconut oil, i’m about to start her on cod liver oil, and she has had cranio sacral therapy, which seemed to be the most effective for her seizures. However she is doing better but is not seizure free and her behavior is starting to get worse (she does not have autism, though she’s at high risk for it with her having TSC). Someone mentioned your success with goji berries; wondering if it is still helping. Currently we are about to start down the brain surgery road, but still checking out as many alternative treatments as possible. (oh we also do essential oils and herbs). You can email me at heatherrlittle@gmail.com

]]> Comment on Himalayan Goji Juice by Mrs. Parul Vipparthi http://hope4melissa.com/treatments/himalayan-goji-juice/comment-page-1/#comment-9154 Mrs. Parul Vipparthi Sat, 14 Jul 2012 08:44:45 +0000 http://karenarnolddesign.com/hope4mel/treatments/himalayan-goji-juice/#comment-9154 Hello I live in India,hyderabad. I have a 5 year old daughter with a brain disorder called 'Tuberous Sclerosis' and was diagnosed at 4 months. She has seizures everyday and is on AEDs from last 5 years. After trying all the medications, we settled on two-sabril and valparin because only those 2 seem to work on her without unbearable side effects. She is still not seizure free and has one seizure a day after wakeup in the morning. This seizure lasts anywhere between 1 to 20 minutes and she would have long seizure at least twice a week. It takes 2-3 days for her to recover a long seizure and that generally makes her very dull and drowsy. I would like to know if goji juice will help her. Please let me know about more details on how it helped Mellissa in controlling her seizures. Does Melissa also have TS? Was she on any other diet with goji juice? Thank you, God bless parul Hello

I live in India,hyderabad. I have a 5 year old daughter with a brain disorder called ‘Tuberous Sclerosis’ and was diagnosed at 4 months. She has seizures everyday and is on AEDs from last 5 years. After trying all the medications, we settled on two-sabril and valparin because only those 2 seem to work on her without unbearable side effects. She is still not seizure free and has one seizure a day after wakeup in the morning. This seizure lasts anywhere between 1 to 20 minutes and she would have long seizure at least twice a week. It takes 2-3 days for her to recover a long seizure and that generally makes her very dull and drowsy.

I would like to know if goji juice will help her. Please let me know about more details on how it helped Mellissa in controlling her seizures. Does Melissa also have TS? Was she on any other diet with goji juice?

Thank you,
God bless
parul

]]> Comment on Guestbook by Stacy Seigfred http://hope4melissa.com/guestbook/comment-page-1/#comment-6652 Stacy Seigfred Fri, 02 Apr 2010 14:00:33 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-6652 Hi Alaina - So glad to see the twins are doing so well. We should get together for coffee/play date one of these days :> This week we discovered that Katie is allergic to sulfa. She is still getting over the effects of that, most obvious being a rash all over! Poor kiddo. Anyway, I hope life is treating you well. Stacy Hi Alaina – So glad to see the twins are doing so well. We should get together for coffee/play date one of these days :>
This week we discovered that Katie is allergic to sulfa. She is still getting over the effects of that, most obvious being a rash all over! Poor kiddo.
Anyway, I hope life is treating you well.
Stacy

]]> Comment on Guestbook by Shelly Gaddis http://hope4melissa.com/guestbook/comment-page-1/#comment-4918 Shelly Gaddis Tue, 29 Dec 2009 00:45:52 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4918 Alaina, Congrats!! I'm so happy for you and your family! I hope that you can make it home soon. I have some car seats for you if you think that they will work. I'm not sure what the best # to reach you is at so you can give me a call when you have a chance! Congrats again! Shelly Alaina,
Congrats!! I’m so happy for you and your family! I hope that you can make it home soon. I have some car seats for you if you think that they will work. I’m not sure what the best # to reach you is at so you can give me a call when you have a chance!

Congrats again!
Shelly

]]> Comment on Guestbook by Sheila Wall http://hope4melissa.com/guestbook/comment-page-1/#comment-4897 Sheila Wall Wed, 23 Dec 2009 04:19:37 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4897 Oh my goodness, Alaina! I can't believe so much has been going on with you recently! Twins...WOW!! Congrats! I hope you and your precious, precious babies are doing well! You are all in our prayers! Love and hugs! Sheila Oh my goodness, Alaina! I can’t believe so much has been going on with you recently! Twins…WOW!! Congrats! I hope you and your precious, precious babies are doing well! You are all in our prayers! Love and hugs! Sheila

]]> Comment on Guestbook by Lori Davis http://hope4melissa.com/guestbook/comment-page-1/#comment-4895 Lori Davis Wed, 23 Dec 2009 01:43:53 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4895 Hi Alaina, I just got a chance to read your updates on the twins. Sorry you can't be home for Christmas. The offer still stands for anyone to stay here. Let me know if there's anything we can do. Lori Hi Alaina, I just got a chance to read your updates on the twins. Sorry you can’t be home for Christmas. The offer still stands for anyone to stay here. Let me know if there’s anything we can do. Lori

]]> Comment on Guestbook by christa bauman http://hope4melissa.com/guestbook/comment-page-1/#comment-4888 christa bauman Tue, 22 Dec 2009 05:23:30 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4888 Finally got to read through your updates! Thinking of you and praying for you all. let me know what i can do! Finally got to read through your updates! Thinking of you and praying for you all. let me know what i can do!

]]> Comment on Guestbook by Cari Jo Tryon http://hope4melissa.com/guestbook/comment-page-1/#comment-4843 Cari Jo Tryon Wed, 16 Dec 2009 18:32:23 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4843 Oh Alaina! Congratulations :)))) TWINS - wow, we were joking about that in class. I'm praying for you guys and please please, let me know if you need anything here in Sioux Falls. Serious. Take care and enjoy those lovely babes. xo Cari Jo Oh Alaina! Congratulations :) ))) TWINS – wow, we were joking about that in class. I’m praying for you guys and please please, let me know if you need anything here in Sioux Falls. Serious. Take care and enjoy those lovely babes. xo Cari Jo

]]> Comment on Guestbook by Natalie Gaudio http://hope4melissa.com/guestbook/comment-page-1/#comment-4840 Natalie Gaudio Tue, 15 Dec 2009 23:47:41 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4840 Alaina and family: Congratulations on the birth of Ben and Tayla. May the Lord bless them with good health and let them grow in the eyes of God. May the Lord also bless your little Melissa and that she may continue to grow. I will pray for you all and a safe recovery for the little ones. Natalie Gaudio daughter in law to Diane and Lou Gaudio Alaina and family:

Congratulations on the birth of Ben and Tayla. May the Lord bless them with good health and let them grow in the eyes of God. May the Lord also bless your little Melissa and that she may continue to grow. I will pray for you all and a safe recovery for the little ones.

Natalie Gaudio
daughter in law to Diane and Lou Gaudio

]]> Comment on Guestbook by Teri Vander Stouwe http://hope4melissa.com/guestbook/comment-page-1/#comment-4827 Teri Vander Stouwe Sun, 13 Dec 2009 18:25:23 +0000 http://karenarnolddesign.com/hope4mel/guestbook/#comment-4827 Alaina and family, Just wanted you to know I am thinking and praying for you and your family. Hoping that everything goes smoothly- no rollar coaster NICU stays and you are able to be home soon with those babies. the pictures show how gorgeous these two little ones are. love- Teri Alaina and family,

Just wanted you to know I am thinking and praying for you and your family. Hoping that everything goes smoothly- no rollar coaster NICU stays and you are able to be home soon with those babies. the pictures show how gorgeous these two little ones are. love- Teri

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