I am very happy to say Melissa is 41 days with only one cluster of seizures and 30 days with no seizures!!!!
She got really sick in Aug and that is when the seizures quite. I’m not sure exactly what did it as we did many different things for her in Aug. We did up her Goji when she was sick though and that is when the seizures quit so I’m guessing that that has played a big roll in the no seizures so I have continued to give her more a day. We also started seeing a new chiropractor and did a week of crainal sacral therapy on her.
She got ankle and foot orthotics(braces for her ankles and feet).Lois her Physical Therapist(pt) calls them Barbies braces as Melissa still wears a size 1 infants shoes. She has got to have about the smallest braces made.
We also got a stander for her that we are bowowing from Children Care Hospital and School which is where Melissa’s physical therapists and occupational therapist come from. The braces are to help her so that when she is in a standing position she doesn’t roll her feet out like she was doing. So far she loves to be in the stander an can handle it for about 30 minutes at a time.
Everyday she is walking herself around in circles when she is laying on the floor on her back. Last week she grabbed one of the toys off her gym pulled it off and bopped herself in the face with it! She was so mad as she has never done that before.
We are so excited at the changes we are seeing in her.