October 8, 2008

I love Melissa’s new website compliments of Karen Arnold. She said Melissa was a big girl now and needed a big girl website. Thank you Karen!

I am hoping to get new pictures up soon of Melissa. She is really changing and getting the big kid look to her. She even got to be a flower girl in her big sister’s wedding. She rode down the aisle in her chair and was pushed by the ring bearer, her big brother, Josiah who was very honored to push her.

We had her at the doctors the other day and she weighs 22lbs 14ozs and is 35 ½ in long. The funny thing is that I was talking with a friend who has carried Melissa many times and we both agreed that she feels like she weighs about 30+ lbs. I told my friend that she probably only weighs 22lbs since she always feels way heavier then she really is. My neighbor guessed Melissa at 37 lbs while holding her. There are days that Melissa feels like a lightweight and other days you go to pick her up and she feel like she has lead in her butt. We use the CP growth chart and at least she is on the chart unlike the “normal” chart. I know her weight is a little of a concern to the doctor but I’m not concerned at all anymore. Melissa has muscle on her, she has a healthy glow about her, she is very healthy, alert, and eats like a horse. I say all those things mean that she is getting what she needs. Even though she is not on track developmentally she is always in a constant state of chance and improvement. Besides the doctors basically told me that because she wasn’t developing before the infantile spasms she would most likely be mentally retarded. Well, Melissa is far from mentally retarded. The girl is so very smart it is only her body that won’t work for her. She knows what she wants and finds ways to let us know. Besides, Lindsey and Josiah are lightweights too so I think part of Melissa’s small body is genetics.

She rolled over to her right today! She has been rolling to her left side continually for about 4 months now but never rolls to her right until today! She actually rolled all the way to her tummy when rolling to her left us usually just rolls to her side to get off her back. She stayed on her tummy for over three minutes before complaining. She hates to be on her tummy so I was very impressed. In fact, it was as if she was trying to figure out how she rolled that way.

She is cocking her neck around to study and observe people more and more. She is using “yes” and “no” more and more often when being asked a question. We still don’t know if she is really answering us, but it does seem to be appropriate for the question about 75% of the time.

One thought on “October 8, 2008

  1. MYSONJOSHUA says:
    Unknown's avatar

    YOU AND I ARE ON THE SAME BOAT. MY SON IS 8 MONTHS OLD AND AT THE AGE OF SIX MONTHS HE DID AN EPISODE WHILE DRINKING A BOTTLE. HE LIFTED UP HIS HANDS AND WAS SHAKING AND WAS STARING INTO SPACE. SO I TOOK HIM IN AND THEY SAID THAT HE WAS HAVING SEIZURES WHICH WAS CALLED INFANTILE SPASMS. TO MAKE HIS BRAIN WAVES START UP QUICKER AND WAKE HIM UP MORE THEY GAVE HIM THREE MEDICATIONS. ONE WAS ACTH, THE OTHR WAS RITIDINE WHICH WAS FOR THE STOMACH ACIDS WHILE HE WAS ON ACTH, AND THE OTHER WAS TOPAMAX, WHICH IS ANTI SEIZURE MEDICATION. NOW MY SON WAS LIKE YOUR DAUGHTER, HE COULDN’T REALLY ROLL OVER HE COULDN’T SIT UP HIS HEAD WAS ALWAYS LAYING BACK TOO. BUT IN THE BEGINNING OF HIS LIFE HE WAS CRYING LOUD, HE WAS LAUGHING, AND HE ACTED NORMAL, BUT HE SLEPT ALL DAY. NOW WHY WOULD A BABY SLEEP ALL DAY. BUT THE ACTH IS OFF AND HE ISN’T TAKING NO MORE RITIDINE, BUT HE WOULD BE TAKING TOPOMAX FOR A COUPLE OF MONTHS TO MAKE SURE HE WOULDN’T BE HAVING ANY MORE SEIZURES. HE HASN’T HAD ONE SINCE CLOSE TO TWO MONTHS NOW. HE IS GOING FOR OCCUPATIONAL THERAPY AND HE IS GOING FOR PHYSICAL THERAPY TOO. I DO EXERCISE WITH HIM EVERYDAY AND I TEACH HIM HOW TO SAY MOMMY AND SAY I LOVE YOU. BUT HE IS MAKING A LOT OF NOISES. I HAVEN’T BEEN WORKING SINCE I WAS PREGNANT. I HAVE TWO OTHER KIDS THAT I ALSO HAVE TO TAKE CARE. BUT THEY ARE IN SCHOOL. I’M HOME DOING A WHAT A MOTHER DOES AND WATCHING MY LITTLE ONE. WHEN I FOUND OUT ABOUT MY SON JOSHUA I CRIED. I WONDERED WHY MY SON. ONLY THE LORD KNOWS. I HAVE A LOT OF PEOPLE WHO ARE ALSO PRAYING FOR MY SON. I APPRECIATE WHAT PEOPLE ARE DOING FOR ME. BUT I HOPE FOR THE BEST WITH YOUR FAMILY AND MELISSA. GOD BLESS TO YOU ALL.

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