December 13, 2009

We had a very good day today. Ben is off all breathing support. Both of their Billirubin levels are down I’m hopeful that they will be off the light tomorrow. Once they are off of lights they can go in a regular crib with clothes on so we can see how well they are regulating their body temp. They are weaning the IV fluid and upping the feeds. They should be off IV fluids by tomorrow night and hopefully have their IV locks out by Tues.

They have thier newborn screen done tomorrow pray that their Phenyalanine levels are normal.

Ben woke up last night and started to nurse. Tayla on the other hand started to sleep. I am nursing both of them and they are receiving a full feeding though the feeding tube. Tayla maintained her weight last night she is down to 4lbs 8oz. Ben dropped another ounce he is down to 4lb 1oz. They are telling me that they are still in the normal range for weight loss but having them so tiny in the first place it is hard to believe.

It is looking like within the next 24-48 hours the only reason we will still be here is feeing issues.

Please continue to pray for our family.