It has been awhile since I posted. We have been having computer problems and I was out of town and sick. We had a fundraiser for Melissa and it went great! We have the money set aside for her in an account. This money will only be used to pay for things for Melissa that insurance doesn’t cover.
Melissa has gained such a personality she knows what she wants and when she wants it! The other day she spit sweet potatos out at her sister after a few minutes Shelby goes mom I don’t think she likes them. I had to agree as she never spits food out in fact Melissa lives to eat (you’d never guess that by looking at her as she is so little but she eats way more then any of my other kids at her age).
There has been a change in her with her therapists. She acts like she want to get going and she is going to work to do that. She is getting Physical Therapy 3x a week now and is so tired when she is done with a half hour session.
We just did another 11 treatments of Hyperbaric Oxygen Therapy on her and while doing that she started holding her bottle (not by herself yet but, putting her hands on it is a huge step) She is grabbing the toys on her gym that she lays under and sometimes even pulling them off. When working with her Occupational Therapist she is now making purposeful movements of pushing buttons to turn things on! Wow, what a difference a year ago they were just trying to get her to see something red or yellow and we had to be in a dark room with a light on the object they were trying to get her to look at!
We got to a point I didn’t think the Himalayan Goji Juice was doing much for her until we ran out, I’ll make sure she gets her Himalayan Goji Juice now! The Goji has helped so much with anything to do with her mouth and her seizures. She babbles, and coos, eats table foods, smiles more, laughs, and the seizures are less and less intense. I can actually leave her sometimes she has improved so much after starting on the Goji.

We are busy finalizing the plans for Melissa’s fundraiser. Only 14 days till the fundraiser. Most of the things that we have found to help her come out of our pocket for expense. I have to say so far we have been so blessed Melissa has had so many doors opened for her-I know we are doing what is right for her. So many people have been so good to our family. Thank you!
I have to say thank you to Sara without her we would not have this awesome website! Thank you Sara!
Melissa had several times this week when she laughed! So sweet. Her therapist commented that they went the longest amount of time without Melissa putting her hands in her mouth-25 minutes. She is eating table foods and about two months ago we were just beginning to transition her from baby food to chopped up food. She is trying to give herself more oral stimulation trying to chew on anything near her mouth. Next we need to get her to be able to bring things to her mouth with her hands. She has started straightening out her arms and is putting some weight on her hands while on her tummy.

We’ll I’m happy to say that Melissa went 8 days seizure free! She has had some again but, not as often or as hard. Life with a special needs child has many ups and downs. Sometimes we go two steps forward and one step back and other times we go two steps forward and three steps back. I just keep reminding myself how far she has come in the last year. A year ago she was not in there I’m not sure if it was the side effects of the drugs or how compromised her health was but here little eyes were lifeless. Now her eyes shine! and when she smiles (which I always wish was more) her whole face shines! A year ago she couldn’t even hold up her head now she has complete forward control! A year ago she couldn’t even straiten her legs if there was any weight on them now she can push her body up with her feet and hold it for about 10 seconds! She has rolled over six time since Nov. The other day we got her giggling for over a minute-that was the first time we got giggles like that out of her-it’s so much fun! There are so many other things I could just go on and on and I’m sure I will cover them all at some point. We continue to research for ways to help Melissa and we have begun to get a great network of people who truly care about Melissa for that we are truly grateful. We are so blessed to have Melissa we continue to learn each and every day just how blessed we are.

Melissa rolled over 5 times last week! The only other time she has rolled over in her life was last Oct and that was only once. So we are so excited! Two weeks ago we started her on a supplement called Go-Ji and she has been seizure free for six days! The most she has gone with out seizures in the last 13 months has been about two days so six days is huge! We are so hopeful and excited for Melissa. Her smiles have been more in the last week also. To have your little one look at you and smile is such a delight.